Hereditary Angioedema

Resources for Diagnosing and Treating Hereditary Angioedema (HAE)

SEMPA is a partner of “HAE: Learn About It, Talk About It,” a clinician education program supported by Shire aimed at educating and increasing awareness about hereditary angioedema (HAE) among various specialists that see patients with HAE to help advance patient care.  

HAE is a rare and potentially life-threatening disorder characterizedby sudden, severe and sometimes painful swelling episodes that can affect any part of the body.1 Because HAE symptoms can mimic other emergencies,including appendicitis, acute abdomen, or an allergic reaction, the average patient can endure more than a decade of repeated misdiagnoses before HAE is identified.1,2   

As the first line of contact with undiagnosed and diagnosed HAE patients,in many cases, emergency physicians’ assistants can play a role in improving care for patients by quickly recognizing HAE symptoms, understanding disease management paradigms, and referring patients to an HAE-treating physician for appropriate management.   

  • Learn more about how to diagnose HAE and find an HAE-treating allergist in your area at  
  • Watch informational videos featuring leading HAE specialists on the program’s YouTubechannel   
  • Talk about HAE and share these resources with your colleagues and other specialists    

Zuraw BL. N Engl J Med.2008;359:1027-1036.   
Lunn, M., et al. Ann Allergy Asthma Immunol. 2010;104:211–214.