Hereditary Angioedema

Helping Your Patients with Hereditary Angioedema

According to two hospital databases (NEDS
1 and NIS2), about 2 percent of angioedema-related visits to the emergency department in the United States are due to hereditary angioedema (HAE) - a rare, genetic and potentially life-threatening swelling disorder.3 

While HAE is a form of angioedema, it requires different management, so understanding how to identify a patient with HAE is important.

SEMPA is a partner of “HAE: Learn About It, Talk About It,” a clinician education program supported by Shire aimed at educating and increasing awareness of HAE among various specialists that could see patients with HAE to help advance patient care. Emergency medicine physician assistants can play an important role in improving care for patients with HAE because they are often the first line of contact.   

For more information about HAE, visit  and check out the program’s YouTube channel for informational videos featuring leading HAE specialists.

Nationwide Emergency Department Sample 

2. National Inpatient Sample

3. Zilberberg et al. The burden of hospitalizations and emergency department visits with hereditary

        angioedema and angioedema in the United States, 2007. Allergy Asthma Proc 31: 511-519, 2010.